[Whole-course information management in gastrointestinal stromal tumor patients].

Gastrointestinal stromal tumor (GIST) is the most common soft tissue sarcoma of the gastrointestinal tract. With the development of diagnosis and treatment of GIST, the overall survival is significantly prolonged, and GIST may be classified as a "chronic disease". How to effectively manage the patients with whole-course information is an important problem faced by colleagues who are responsible for GIST patients. We believe that every GIST patient has a need for whole-course management, which is also an important factor related to efficacy. The concept of information-based management, the management system in line with the characteristics of GIST disease and full-time managers of GIST disease are the guarantees for the realization of whole-course management, and also the prerequisites for homogeneals diagnosis and treatment of GIST.胃肠间质瘤（GIST）是胃肠道最常见的间叶源性肿瘤。随着对GIST诊疗的进步，患者生存期显著延长，疾病进入"慢性病"范畴。因此，如何对患者进行有效的全程化信息化管理是每一位GIST同仁面临的重要问题。我们认为：每一位GIST患者都有进行全程化管理的需求，这也是保障患者疗效的重要因素；信息化管理的理念、符合GIST疾病特点的管理系统以及专职的GIST疾病管理员，是实现全程化管理的保障，也是实现GIST诊治同质化的必备条件。.