A phenomenological exploration of the mental health experiences of young women with diminished ovarian reserve

Abstract Infertility is a reproductive disease affecting one in six individuals that renders an individual unable to conceive. One cause of infertility is diminished ovarian reserve (DOR), which reduces the quantity and/or quality of a female's oocyte pool. Although typically indicating normal ovarian aging during the late 30s and early 40s, DOR can also impact younger women, increasing their risk for psychological distress from an unexpected diagnosis of infertility. A phenomenological approach examined the mental health experiences and perceptions of infertility‐related mental health care of young women with DOR. Women diagnosed with DOR by age 35 in the United States who experienced emotional distress during infertility were recruited from infertility‐specific social media and via snowball sampling. Participants completed a demographic survey and semi‐structured individual interview that was audio‐recorded, transcribed verbatim, and analyzed using a phenomenological approach. Ten women ages 27–41 completed the study. On average, participants were 30 years of age at the time of DOR diagnosis (age range 25–35), primarily Caucasian (90%), and married (90%). Two main themes were found: (1) Young women with DOR feel like a “forgotten community” coping with an invisible disease; and (2) Not all fertility clinics are created equal. Participants perceived their diagnosis as devastating and hopeless and urged others to find a provider with ample experience treating patients with DOR. This study helped to understand how young women with DOR perceive their mental health and identified a significant need for advancing towards more holistic infertility healthcare that encompasses both physical and mental health.