Lv4
510 积分 2024-10-06 加入
Lived experiences of genetic diagnosis for rare disease patients: a qualitative interview study
2天前
已完结
Exploring the intersection of caregiving burden, parenting stress, and self-efficacy in caregivers of children born with esophageal atresia
2天前
求助中
Chronic Sorrow in Parents of Children with a Chronic Illness or Disability: An Integrative Literature Review
2天前
已完结
Multiple Roles of Parental Caregivers of Children with Complex Life-Threatening Conditions: A Qualitative Descriptive Analysis
2天前
求助中
Exploring the experiences of parents of children with Duchenne muscular dystrophy in Turkey: A descriptive phenomenological study
2天前
已完结
Experiences of Parents of Children with Mucopolysaccharidosis in Türkiye: A Qualitative Study
2天前
求助中
Emotions experienced by parents whose children have spinal muscular atrophy: A qualitative research
2天前
已完结
Identifying Opportunities to Provide Family-centered Care for Families With Children With Type 1 Spinal Muscular Atrophy
2天前
已完结
Balancing care and well-being: A study on the quality of life of primary caregivers parents of children with central nervous system congenital anomalies
2天前
求助中
The Supportive Care Needs of Parents With a Child With a Rare Disease: A Qualitative Descriptive Study
2天前
已完结
皖公网安备34019202002308
