Interconnected challenges in caregiving: a multidimensional analysis of stroke survivors' caregivers during the hospital-to-home transition

Abstract Background Stroke survivors (SS) face significant challenges during their transition from hospital to home, impacting both their own well-being and that of their caregivers. Informal caregivers, often family members, assume substantial caregiving roles without professional training, leading to emotional strain and caregiver burden. Understanding the experiences of caregivers during this critical transitional period is essential for developing targeted interventions that alleviate burden and improve caregiving outcomes. Aim This study aims to provide a comprehensive, multidimensional understanding of SS caregivers' experiences during the transitional care phase, using Automatic Analysis of Textual Data (AATD) to uncover complex relationships and hidden patterns in caregivers' narratives. Methods A qualitative design was employed, utilizing semi-structured interviews with 18 SS caregivers. Data were analyzed using AATD, applying exploratory multidimensional data analysis (EMDA) to identify key themes and interconnections within caregivers' experiences. Findings. Findings revealed five central themes: the role of social support, the need for practical support, pre-discharge preparation, practical daily challenges, and emotional strain. Social support and practical assistance emerged as crucial factors in reducing emotional burden. Caregivers emphasized the importance of pre-discharge training and clear instructions to navigate the transition. The analysis revealed the interdependence between practical and emotional caregiving demands, highlighting the need for integrated, holistic support systems. Conclusions This study underscores the complex, multidimensional nature of caregiving during the transition from hospital to home. The results suggest that effective caregiving interventions must address both practical and emotional aspects, integrating preparation, social support, and practical assistance to enhance caregiver resilience and reduce burden.