医学
生活质量(医疗保健)
血友病
临床试验
疾病
健康相关生活质量
老年学
儿科
病理
护理部
作者
Eduardo Remor,Nancy L. Young,Sylvia von Mackensen,Elena Lopatina
出处
期刊:Haemophilia
[Wiley]
日期:2004-10-01
卷期号:10 (s4): 30-34
被引量:60
标识
DOI:10.1111/j.1365-2516.2004.01004.x
摘要
Summary. The purpose of this paper is to summarize the state of the art in measuring quality of life in haemophila populations. The paper reviews the measures recently included in haemophila trials in the published literature. It also summarizes the development of four new disease‐specific measures of health‐related quality of life. Two of these were developed for children (the Haemo‐QoL and the CHO‐KLAT), and two for adults (the Hemofilia‐QoL and the Hemolatin‐QoL). These new measures show promise for use in clinical trials. Further research is in progress to complete the psychometric testing and cross‐cultural validation.
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