来世
灵性
疾病
主题(计算)
对死亡的恐惧
老年学
预测(人工智能)
心理干预
生活质量(医疗保健)
医学
死因
心理学
精神科
替代医学
护理部
病理
操作系统
哲学
人工智能
认识论
计算机科学
作者
Charity I Oyedeji,John J. Strouse,Rita Masese,Nathan Gray,Tolu O. Oyesanya
标识
DOI:10.1177/00302228221116513
摘要
The life-limiting and unpredictable nature of sickle cell disease (SCD) is well-established, yet there is limited literature on end-of-life planning. The purpose of this study was to describe perspectives about preparing for death for older adults with SCD. We enrolled 19 older adults with SCD (age ≥ 50 years) into this qualitative descriptive study. Theme 1 was “anticipation of early death,” with sub-themes: (a) informed of early death and (b) making plans for death. Theme 2 was “near death experiences.” Theme 3 was “differences in level of comfort with death” with subthemes: (a) death as a part of life and (b) differences in level of comfort discussing death. Theme 4 was “influence of spirituality” with subthemes: (a) God controls the timing of death and (b) belief in the afterlife. These results will inform interventions to improve the quality of patient-provider communication to provide goal-concordant end-of-life care for adults with SCD.
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