上游(联网)
下游(制造业)
框架(结构)
范围(计算机科学)
精密医学
公共卫生
公众参与
包裹体(矿物)
上游和下游(DNA)
基因组医学
心理干预
公共关系
政治学
业务
社会学
工程类
社会科学
生物
计算机科学
医学
营销
遗传学
护理部
电信
结构工程
计算生物学
程序设计语言
标识
DOI:10.1080/15265161.2023.2180108
摘要
This paper problematizes the precision medicine approach embraced by the All of Us Research Program (US) and by Genomics England (UK) in terms of benefits distribution, by arguing that current “diversity and inclusion” efforts do not prevent exclusiveness, unless the framing and scope of the projects are revisited in public health terms. Grounded on document analysis and fieldwork interviews, this paper analyzes efforts to address potential patterns of exclusion upstream (from participating in precision medicine research) and downstream (from benefitting from precision medicine outputs). It argues that efforts for inclusion upstream are not corresponded downstream, and this unbalance jeopardizes the equitable capacities of the projects. It concludes that enhanced focus on socio-environmental determinants of health and aligned public health interventions as precision medicine outputs would be to the benefit of all and especially of those who are most at risk of (upstream as well as downstream) exclusion.
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