医学
特应性皮炎
生活质量(医疗保健)
疾病
家庭医学
患者满意度
疾病管理
疾病负担
护理部
内科学
帕金森病
皮肤病科
作者
L. Howie,Kara Orevillo,Michelle Tu,Alan Schwartz,Melanie Funk,Cheryl Talent,Korey Capozza
摘要
Atopic dermatitis patients and caregivers experience a high physical, mental and financial burden in Australia. We outline how the current care model impacts disease management and patients' quality of life via a survey of 265 Australian patients and caregivers to capture the experience of managing atopic dermatitis (AD) in Australia. Patients report an unsatisfactory quality of life and a high burden of disease with poor long-term control and low treatment satisfaction. They also reported changing spending and saving patterns to fund medical care. Patient experience improves with more specialised care that incorporates shared decision-making and patient/caregiver training beyond the clinic visit. These results highlight the need for improved general practitioner (GP) education, expedited access to medical specialists, greater patient involvement in treatment choices and more financial assistance to improve the experience of Australian patients and caregivers.
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