医学
临床试验
肺动脉高压
感知
重症监护医学
物理疗法
透视图(图形)
内科学
计算机科学
生物
人工智能
神经科学
作者
Vicky Mai,C. Gosselin,Ève Tremblay,Gabrielle Rompré,Annie C. Lajoie,Jason Weatherald,Jean‐Christophe Lega,Sébastien Bonnet,Steeve Provencher
出处
期刊:Thorax
[BMJ]
日期:2023-05-04
卷期号:78 (7): 721-725
被引量:2
标识
DOI:10.1136/thorax-2022-219490
摘要
The value placed by patients and their caregivers on the components of composite outcomes in pulmonary arterial hypertension (PAH) remains unknown. We surveyed the importance of these outcomes from a patients' and caregivers' perspective, with participants (n=335, including 257 patients with PAH) rating individual components defining clinical worsening in PAH trials as of critical, major, mild-to-moderate or minor importance. Most outcomes were considered of major or mild-to-moderate importance to patients. Death was the only outcome considered of critical importance. Perceptions of clinical outcomes varied between patients and caregivers. Integrating patients' perception in the elaboration of clinical trials is essential.
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