[Systematic review of the qualitative researches on care experience of caregivers of burn children].

Objective: To systematically review the care experience of caregivers of burn children, so as to provide references for guiding the continuing care in hospitals, communities, and homes. Methods: Databases including Cochrane Library, PubMed, ScienceDirect, ProQuest, Web of Science, and CINAHL were retrieved with the search terms of " burn" , " care/caregivers/nursing/father/mother/relatives" , " needs/perceptions/exceptions/attitudes/feelings/demands/experiences" , " qualitative research" , and the Chinese Journals Full-text Database, China Biology Medicine disc, VIP Database, and Wanfang Data were retrieved with the search terms in Chinese version of "//" , "//////" , "/////" , "" to search the qualitative researches on care experience of caregivers of burn children published from the establishment of the databases to November 2019. After screening and extracting the data, the quality evaluation criteria for qualitative research of the Australian Joanna Briggs Institute Evidence-Based Health Care Center and its integrative/aggregative synthesis method were used to assess the quality of the included literature and meta-integrate the research results respectively. Results: A total of 16 studies and 269 caregivers were enrolled. The quality of one included literature was grade A, and the quality of 15 included literature was grade B. A total of 65 research results were extracted with totally 6 categories formed after summarization, and 2 integrated results obtained as follows: (1) The caregivers experienced heavy psychological pressure and burden in the care process, which had a significant impact on family, social relations, and daily life. (2) With the care time lapsing, through the support of all sectors of society and self-adjustment, the caregivers gradually accepted the reality and actively took various countermeasures, but they still faced many challenges in disease care. Conclusions: The caregivers of burn children have many physical and mental health problems and face many care challenges. The government, medical and health institutions, and society should give a great attention to these issues, improve the social support system and security system, reduce the family-related pressure of burn children's families, and improve the quality of family life.目的： 系统评价烧伤患儿照顾者的照护体验，为指导医院、社区及居家的延续性护理提供参考。 方法： 以"burn"、"care/caregivers/nursing/father/mother/relatives"、"needs/perceptions/exceptions/attitudes/feelings/demands/experiences"、"qualitative research"为检索词检索《Cochrane Library》《PubMed》《ScienceDirect》《ProQuest》《Web of Science》《CINAHL》数据库，以"烧伤/烧伤患儿/烧伤幼儿"、"照顾者/照护者/照料者/照护/父亲/母亲/家属"、"需求/认知/期望/态度/感受/体验"、"质性研究"为检索词检索《中国期刊全文数据库》《中国生物医学文献数据库》《维普数据库》《万方数据库》，检索各数据库自建库起至2019年11月发表的有关烧伤患儿照顾者照护体验的质性研究。在筛选提取资料后，分别采用澳大利亚乔安娜布里格斯研究所循证卫生保健中心质性研究质量评价标准和汇集性整合方法对纳入文献进行质量评价和研究结果的荟萃整合。 结果： 共纳入16篇文献269名照顾者。1篇纳入文献质量为A级，15篇纳入文献质量为B级。共提炼出65个研究结果，归纳总结后形成6个类别，最终合成2个整合结果：(1)照顾者在照护过程中经历沉重心理压力与负担，对家庭、社会关系以及日常生活产生了重大影响。(2)随着时间的推移，通过社会各界的支持以及自我调整，照顾者逐渐接受现实并积极采取各种应对措施，但仍然面临诸多疾病照护挑战。 结论： 烧伤患儿照顾者存在较多身心健康问题，面临诸多照护挑战。政府、医疗卫生机构和社会应高度重视该问题，完善社会支持系统和保障制度，减轻烧伤患儿家庭相关压力，改善家庭生活质量。.