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The Management of Patients With Alopecia: A Qualitative Study of Patient Perspectives on Barriers and Facilitators to Means of Concealment

伪装 主题分析 定性研究 护理部 心理干预 心理学 心理弹性 质量(理念) 医学 弹性(材料科学) 医学教育 社会支持 梅德林 护理干预分类 护理实习 定性性质 临床实习 生活质量(医疗保健) 定性分析 社会实践 生态系统理论 焦点小组 患者安全 患者满意度 患者体验
作者
Ziwei Xu,Yanhua Li,Xiao-qin Jia,Xiaoyu Wan,Mengyao Han,Qianqian Zheng,Beixi Shi,Yan Zou,Yue Su,Xiaojuan Wan,Amanda Lee,Mark Hayter,Yu ZHANG
出处
期刊:Journal of Advanced Nursing [Wiley]
标识
DOI:10.1111/jan.70357
摘要

ABSTRACT Aim To evaluate bioecology and environmental influences of patients presenting with alopecia regarding decisions made for hair camouflage. Design A descriptive qualitative design was used. Methods Sixteen adult patients with alopecia were purposefully recruited from two specialised trichology clinics across the Jiangsu Province, China. Surveys and in‐depth semi‐structured interviews were conducted between October 2024 and December 2024. Practical thematic analysis of transcribed data was informed through Bronfenbrenner's ecological systems theory. Results Five major facilitators (camouflaged demands drive, camouflaged psychological resilience, habituation and dependence, family resilience and cross‐border support, social acceptance) and four major barriers (limited future orientation, perceived coordination barriers, marginalisation of camouflage‐related information, runaway costs) to hair camouflage were identified. These themes align with different levels of the ecological systems theory. Conclusions This study captures the complex ecological and intersectional nature of choice, experience and decision‐making in patients' views on hair camouflage amid alopecia. Nursing professionals must understand these complexities to provide informed support and evidence‐based interventions throughout patients' experiences with alopecia. Implications for the Profession and/or Patient Care This study uses patient voices to offer ecological insights for a holistic understanding of their experiences. It provides knowledge relevant to nursing practice and alopecia patient support. Understanding patient‐identified barriers and facilitators in alopecia camouflage is essential to inform more patient‐centred approaches to choice, decision‐making and psychological adaptation. Nurses are pivotal in this process, making enhanced understanding crucial for improving patients' psychological wellbeing and quality of life. Impact Our research reveals factors that equip nurses and the broader healthcare team to develop targeted counselling strategies, educational programs and resources related to camouflage for patients with alopecia. The hair‐camouflage industry can use these insights to create more personalised and accessible products, better addressing patients' concealment needs and preferences. Reporting Method Standards for Reporting Qualitative Research. Patient and Public Contribution No patient or public contribution.
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