银屑病
医学
社会心理的
疾病
生活质量(医疗保健)
瘙痒的
皮肤病科
家庭医学
精神科
内科学
护理部
作者
Gerald G. Krueger,John Koo,Mark Lebwohl,Alan Menter,Robert S. Stern,Tara Rolstad
出处
期刊:PubMed
日期:2001-03-01
卷期号:137 (3): 280-4
被引量:311
摘要
Psoriasis can have a profound impact on a patient's quality of life.To assess patients' perspectives on the impact of psoriasis on their lifestyle and emotional well-being and the social ramifications of living with the disease; to determine the range of therapies available; and to ascertain patients' satisfaction with the management of their disease.A 4-page, self-administered questionnaire was mailed on July 13 and 14, 1998, to the entire membership of the National Psoriasis Foundation (N = 40 350), and followed by a telephone survey of responders with severe psoriasis.Patients' perspectives on the psychosocial impact of psoriasis and the effectiveness of the management of their disease.Of the 40 350 questionnaires mailed out, a response rate of 43% was realized. The most frequent symptoms experienced by the mail-survey respondents were scaling (94%), itching (79%), and skin redness (71%); 39% reported that psoriasis covered 10% or more of their bodies. A total of 6194 patients with severe psoriasis were entered into the database for the telephone survey. Of these, 79% reported that psoriasis had a negative impact on their lives, 40% felt frustrated with the ineffectiveness of their current therapies, and 32% reported that treatment was not aggressive enough.The unprecedented response to the survey provides compelling evidence that individuals with psoriasis believe that the disease has a profound emotional and social as well as physical impact on their quality of life. Many patients with psoriasis, particularly those with severe disease, are frustrated with the management of their disease and by the perceived ineffectiveness of their therapies. Physicians may need to improve communication with their patients and should reevaluate their management of psoriasis.
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