DEVELOPING A SCALE TO MEASURE NEGLECT SEVERITY: THE HEALTH-RELATED SEVERITY IN ELDER NEGLECT SCALE

Abstract Caregiver neglect in older persons can vary dramatically in severity, with differential impact on an older adult’s health. Assessing severity is critical for research and clinical practice but has received focus until recently. To address this gap, we developed a scale to describe the health-related severity of elder neglect using an expert consensus method. In development, the experts conceptualized severity as: (1) the level of risk that neglectful behaviors would cause morbidity or mortality and (2) related timeframe. Additionally, the experts recommended that the scale identify risk for future neglect. The scale was designed iteratively, and, after finalization, we assessed face and construct validity. The final scale was found to have validity. It has 5 levels: not present, not present / potential risk, present / mild, present / moderate, present / severe. Each level has a description to guide assessment. For example, present / mild is described as: “caregiving behaviors not optimal, with potential to create morbidity, but low concern for immediate danger,” present / moderate is: “caregiving behaviors with significant potential to create morbidity within the next 4 weeks,” and present / severe is “caregiving behaviors creating immediate danger of morbidity or mortality -- insufficient access to shelter, food, medication – with alternative living situation or ED visit / hospitalization recommended.” The description of not present / potential risk is: “though neglect not currently occurring, factors present that raise concern for future neglect risk.” Assessing neglect severity using this scale may improve understanding of the phenomenon and inform intervention.