互联网隐私
立法
信息隐私
国家(计算机科学)
计算机安全
业务
政治学
公共关系
法学
计算机科学
算法
出处
期刊:Journal of Law Medicine & Ethics
[Cambridge University Press]
日期:2020-01-01
卷期号:48 (S1): 154-158
被引量:12
标识
DOI:10.1177/1073110520917041
摘要
This article examines the privacy and security issues associated with mobile application-mediated health research, concentrating in particular on research conducted or participated in by independent scientists, citizen scientists, and patient researchers. Building on other articles in this issue that examine state research laws and state data protection laws as possible sources of privacy and security protections for mobile research participants, this article focuses on the lack of application of federal standards to mobile application-mediated health research. As discussed in more detail below, the voluminous and diverse data collected by some independent scientists who use mobile applications to conduct health research may be at risk for unregulated privacy and security breaches, leading to dignitary, psychological, and economic harms for which participants have few legally enforceable rights or remedies under current federal law. Federal lawmakers may wish to consider enacting new legislation that would require otherwise unregulated health data holders to implement reasonable data privacy, security, and breach notification measures.
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