医学
Sturge-Weber综合征
胎记
葡萄酒色斑
波尔图葡萄酒
社会心理的
介绍
皮肤病科
英语
激光治疗
重症监护医学
外科
家庭医学
精神科
激光器
哲学
物理
光学
语言学
作者
Sara Sabeti,Karen L. Ball,Craig N. Burkhart,Lawrence F. Eichenfield,Esteban Fernández Faith,Ilona J. Frieden,Roy G. Geronemus,Deepti Gupta,Andrew C. Krakowski,Moise L. Levy,Denise Metry,J. Stuart Nelson,Megha M. Tollefson,Kristen M. Kelly
出处
期刊:JAMA Dermatology
[American Medical Association]
日期:2021-01-01
卷期号:157 (1): 98-98
被引量:26
标识
DOI:10.1001/jamadermatol.2020.4226
摘要
Sturge-Weber syndrome (SWS) is a neurocutaneous syndrome involving the skin, brain, and eyes. Consensus recommendations for management are lacking.To consolidate the current literature with expert opinion to make recommendations that will guide treatment and referral for patients with port-wine birthmarks (PWBs).In this consensus statement, 12 nationally peer-recognized experts in dermatology with experience treating patients with SWS were assembled. Key topics and questions were formulated for each group and included risk stratification, optimum treatment strategies, and recommendations regarding light-based therapies. A systematic PubMed search was performed of English-language articles published between December 1, 2008, and December 1, 2018, as well as other pertinent studies identified by the expert panel. Clinical practice guidelines were recommended.Treatment of PWBs is indicated to minimize the psychosocial impact and diminish nodularity and potentially tissue hypertrophy. Better outcomes may be attained if treatments are started at an earlier age. In the US, pulsed dye laser is the standard for all PWBs regardless of the lesion size, location, or color. When performed by experienced physicians, laser treatment can be safe for patients of all ages. The choice of using general anesthesia in young patients is a complex decision that must be considered on a case-by-case basis.These recommendations are intended to help guide clinical practice and decision-making for patients with SWS and those with isolated PWBs and may improve patient outcomes.
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