医学
间质性肺病
介绍
临终关怀
缓和医疗
疾病
审计
重症监护医学
预先护理计划
回顾性队列研究
急诊医学
肺
内科学
家庭医学
护理部
管理
经济
作者
Guo Hui,Jennifer Mann,Nicole Goh,Natasha Smallwood
摘要
Abstract Fibrotic interstitial lung disease (f‐ILD) has a guarded prognosis, and the goal of therapy in advanced‐stage disease should be symptom‐based. Despite this, patients may still undergo burdensome investigation at the end of life. A retrospective audit was performed on 67 patients who died from f‐ILD at the Royal Melbourne and Austin Hospitals between 2012 and 2016. Increased investigation burden was associated with lack of outpatient palliative care referral and documented advance care plan, and admission to a high‐dependency unit. Eighteen per cent of patients underwent ongoing investigations after the institution of comfort care. These findings highlight the unmet end‐of‐life care needs of people with f‐ILD.
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