Digital joint discovery tool to support hemophilia patient education

Introduction Recurrent joint bleeding is the most frequent clinical manifestation of severe hemophilia. Unless appropriately managed, even subclinical hemarthrosis can lead to the development of hemophilic arthropathy and chronic pain. The new joint discovery tool shows the anatomical structure of the ancle in different stages of hemophilic arthropathy. The aim of this project is to support HCPs patient information and communication on site ([ Fig. 1 ]). Fig. 1 Digital joint discovery tool. Method Imaging diagnostics of hemophilic patients have been selected such as MRI, ultrasound and X-ray findings and integrated into the development process. This step was followed by a visual transposition as 3D-animation (incl. rotating, tilting, zooming) of the changes in the ancle joint and occurring joint hemorrhages in the course of the disease over time. Results Defined tissue structures can be visualized such as skin, skeleton, capsule as well as most important muscles, ligaments, fascias, vessels and nerves. Corresponding different stages can be visualized strengthening patient/caregiver education: 1. healthy joint 2. acute joint bleed 3. chronic joint bleed 4. first joint destruction 5. joint destruction. The pathomechanisms underlying the individual clinical picture e.g. changes in the joints such as swelling can be demonstrated. The interactive applications of the 3D-visualization can be sent to the physician via link. ​App (IOS) and web application are available to support patient communication and education. The joint can also be virtually projected into the room by means of augmented reality.[ 1 ] Conclusion This first joint discovery can contribute to raising patients awareness thus e.g. offering the potential to support adherence to a beneficial prophylactic treatment regime. User surveys have been prepared to accompany the current implementation. The device could be enlarged for further joints e.g. knee and elbow. Potential applications and future developments of this digital tool are currently under evaluation. Publication History Article published online: 20 February 2023 © 2023. Thieme. All rights reserved. Georg Thieme Verlag Rüdigerstraße 14, 70469 Stuttgart, Germany