社会心理的
定制
生活质量(医疗保健)
医学
老年学
人口
疾病
需求评估
描述性统计
心理健康
家庭医学
精神科
环境卫生
护理部
社会科学
统计
数学
病理
社会学
政治学
法学
作者
Bradley McDaniels,Indu Subramanian,Shelley Kurian,Shilpa Chitnis
标识
DOI:10.1016/j.parkreldis.2023.105395
摘要
Early onset Parkinson's disease (EOPD) affects people in the prime of their lives, typically between 21 and 50 years of age, which results in a variety of challenges that are unique compared to those diagnosed later in life. A better understanding of the unmet needs of this population is critical to delivering bespoke care and improving their quality of life.To assess the unmet needs of people with early onset Parkinson's disease.A cross-sectional sample of 198 adults with self-identified early onset Parkinson's disease completed surveys to ascertain the most common unmet needs of this population. Simple descriptive statistics including frequencies, means, and standard deviations were used to quantify the most common unmet needs and were compared between men, women, and Hispanic/Latino with significance determined by chi-square tests.Overall, the top five unmet needs were (1) need for "a community more like me" (65.2%), (2) more PD information (48%), (3) information about how their PD will progress (47%), (4) help with mental health issues (34.8%), and (5) help with employment issues (33.8%). The top unmet need for men was help with employment issues (50.8%), for women, "a community more like me" (72.3%), and for Hispanic/Latinos, more PD information (47%).Although the number of people living with EOPD is considerably smaller than those with conventional age at onset, the potential impact to quality of life in this population remains tremendous. We propose a framework to start to address these needs.
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