血友病
医学
生活质量(医疗保健)
预期寿命
凝血因子
人口
重症监护医学
物理疗法
老年学
儿科
护理部
内科学
环境卫生
作者
Michael Makris,Riitta Lassila,Megan Kennedy
出处
期刊:Haemophilia
[Wiley]
日期:2024-03-27
卷期号:30 (S3): 5-11
被引量:1
摘要
Abstract As treatments for individuals with inherited bleeding disorders improve, life expectancy increases and is approaching that of the normal population. Concomitant with this we are now seeing the problems of ageing in the bleeding disorder population. Although the clear‐cut association between low clotting factor levels and risk of bleeding is well recognised, a relationship between high levels, some non‐factor therapies and thrombotic risk also exists. The management of thrombosis in persons with inherited bleeding disorders is complex but manageable with modern treatments and collaboration in decision making between health care professionals and patients. Despite the improvements in treatment and reduction in bleeding, mostly musculoskeletal pain continues to be a major issue with advancing age. The management of pain amongst older people with haemophilia who may have multiple comorbidities should involve a person‐centred, holistic, multi‐disciplinary approach to support and optimise long‐term physical functioning and overall quality of life.
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