The continued impact of young onset dementia on dependent children as they make the transition into adulthood –a follow up study to Allen, Oyebode and Allen (2009)

Volume I comprises the research component and includes the Empirical Paper, Literature Review and Public Domain Paper. The literature review considers what is already known about how individuals respond to loss over the dementia journey including death. The quality of the papers is assessed and remarked upon. The Empirical Paper is a continuation study of young people’s experiences of having a father with young onset dementia. A Grounded Theory model of their experiences over the illness journey is presented. The Public Domain Paper gives a brief overview of the empirical paper and the literature review. Volume II comprises the clinical component. Five Clinical Practice Reports are included. The first paper presents a Systemic and Cognitive Behavioural formulation of a female with learning disabilities who was experiencing low self-esteem. The second report is a service evaluation which explored carer’s perceptions of the quality of a local residential unit which they accessed. Quality was compared with national standards for children with profound and multiple learning disabilities. Recommendations for change and improvement were given. The third paper is a case study detailing the assessment, formulation, intervention and evaluation of a young male who was experiencing low self-esteem. A single case study is the fourth paper and outlines an innovative attachment based approach to addressing separation distress in an older adult housed on a continuing needs ward for dementia. The final report is an abstract for a presentation of a four year old girl who was referred for hair pulling behaviour.