Caregiver burden before heart transplantation and long-term mechanical circulatory support: Findings from the sustaining quality of life of the aged: Transplant or mechanical support (SUSTAIN-IT) study

医学 生活质量(医疗保健) 照顾负担 移植 心脏移植 方差分析 心力衰竭 物理疗法 内科学 老年学 疾病 护理部 痴呆
作者
IS Okwuosa,Allen S. Anderson,Michael Petty,Tingqing Wu,Andrei AC,Kao A,John A. Spertus,D. Pham,Clyde W. Yancy,Dew Ma,Eileen Hsich,William Cotts,Justin Hartupee,SV Pamboukian,Francis D. Pagani,Brent C. Lampert,Maryl R. Johnson,Margaret Murray,K Tekeda,M. Yuzefpolskaya,JK Kirklin,Grady KL
出处
期刊:Journal of Heart and Lung Transplantation [Elsevier]
卷期号:42 (9): 1197-1204
标识
DOI:10.1016/j.healun.2023.01.015
摘要

Background Caregiving for heart failure (HF) patients is burdensome. We examined differences in caregiver burden for 3 groups of older advanced HF patients: (1) supported with mechanical circulatory support (MCS) before heart transplantation (HT MCS), (2) awaiting transplant without MCS (HT non-MCS), and (3) prior to long-term MCS and factors associated with burden. Method From October 1, 2015 to December 31, 2018, we enrolled 276 caregivers for HF patients from 13 U.S. sites: 85 HT MCS, 96 HT non-MCS, and 95 prior to long-term MCS. At enrollment, caregivers completed the Oberst Caregiving Burden Scale (15 items, 2 subscales: time (range = 1-5; higher score = more time spent on task) and difficulty (range = 1-5; higher score = higher difficulty of task) and other measures. Statistical analyses included descriptive statistics, ANOVA, chi-square tests, and linear regression. Result Overall, caregivers were aged 60.8 ± 9.8 years and predominantly white, female, spouses, well educated, and reported ≥1 comorbidities. Caregivers overall reported a moderate amount of time spent on tasks and slight task difficulty. Caregivers for HT non-MCS candidates reported significantly less perceived time spent on tasks than caregivers for HT MCS candidates and caregivers for patients prior to long-term MCS (2.2 ± 0.74 vs 2.4 ± 0.74 vs 2.5 ± 0.71, respectively, p = 0.02) and less perceived difficulty of tasks (1.2 ± 0.33 vs 1.4 ± 0.53 vs 1.4 ± 0.54, respectively, p = 0.01). Caregiver and patient factors were associated with caregiver burden. Conclusions Prior to HT and long-term MCS, caregiver burden was low to moderate. Caregiver factors were predominantly associated with caregiver burden. Understanding caregiver burden and factors affecting caregiver burden may enhance preoperative advanced therapies discussions and guide caregiver support. Caregiving for heart failure (HF) patients is burdensome. We examined differences in caregiver burden for 3 groups of older advanced HF patients: (1) supported with mechanical circulatory support (MCS) before heart transplantation (HT MCS), (2) awaiting transplant without MCS (HT non-MCS), and (3) prior to long-term MCS and factors associated with burden. From October 1, 2015 to December 31, 2018, we enrolled 276 caregivers for HF patients from 13 U.S. sites: 85 HT MCS, 96 HT non-MCS, and 95 prior to long-term MCS. At enrollment, caregivers completed the Oberst Caregiving Burden Scale (15 items, 2 subscales: time (range = 1-5; higher score = more time spent on task) and difficulty (range = 1-5; higher score = higher difficulty of task) and other measures. Statistical analyses included descriptive statistics, ANOVA, chi-square tests, and linear regression. Overall, caregivers were aged 60.8 ± 9.8 years and predominantly white, female, spouses, well educated, and reported ≥1 comorbidities. Caregivers overall reported a moderate amount of time spent on tasks and slight task difficulty. Caregivers for HT non-MCS candidates reported significantly less perceived time spent on tasks than caregivers for HT MCS candidates and caregivers for patients prior to long-term MCS (2.2 ± 0.74 vs 2.4 ± 0.74 vs 2.5 ± 0.71, respectively, p = 0.02) and less perceived difficulty of tasks (1.2 ± 0.33 vs 1.4 ± 0.53 vs 1.4 ± 0.54, respectively, p = 0.01). Caregiver and patient factors were associated with caregiver burden. Prior to HT and long-term MCS, caregiver burden was low to moderate. Caregiver factors were predominantly associated with caregiver burden. Understanding caregiver burden and factors affecting caregiver burden may enhance preoperative advanced therapies discussions and guide caregiver support.
最长约 10秒,即可获得该文献文件

科研通智能强力驱动
Strongly Powered by AbleSci AI
更新
大幅提高文件上传限制,最高150M (2024-4-1)

科研通是完全免费的文献互助平台,具备全网最快的应助速度,最高的求助完成率。 对每一个文献求助,科研通都将尽心尽力,给求助人一个满意的交代。
实时播报
刚刚
soulflowers完成签到,获得积分10
刚刚
缪缪缪完成签到 ,获得积分10
刚刚
鸵鸟1437发布了新的文献求助10
刚刚
酷波er应助林松采纳,获得10
1秒前
ll61发布了新的文献求助10
1秒前
科目三应助know采纳,获得10
1秒前
1秒前
2秒前
没了蜡笔的小新完成签到,获得积分10
2秒前
洋洋呀发布了新的文献求助10
2秒前
欣喜的手机完成签到,获得积分10
2秒前
zhq发布了新的文献求助10
3秒前
司音发布了新的文献求助10
3秒前
5秒前
苗晖完成签到,获得积分10
5秒前
5秒前
可爱的珊珊完成签到 ,获得积分10
5秒前
6秒前
Akim应助jcc采纳,获得10
6秒前
炒栗子发布了新的文献求助30
6秒前
7秒前
7秒前
7秒前
8秒前
9秒前
AJO完成签到,获得积分10
9秒前
苗晖发布了新的文献求助20
9秒前
Orochimaru发布了新的文献求助10
9秒前
YSHO完成签到,获得积分10
11秒前
12秒前
12秒前
超越辣鸡的梅吹完成签到,获得积分20
13秒前
blooming boy发布了新的文献求助10
13秒前
13秒前
林松发布了新的文献求助10
14秒前
PL完成签到,获得积分10
14秒前
shuke发布了新的文献求助10
14秒前
柔弱的尔白完成签到,获得积分10
14秒前
萧七七完成签到,获得积分10
14秒前
高分求助中
请在求助之前详细阅读求助说明 20000
One Man Talking: Selected Essays of Shao Xunmei, 1929–1939 1000
Yuwu Song, Biographical Dictionary of the People's Republic of China 700
[Lambert-Eaton syndrome without calcium channel autoantibodies] 520
The Three Stars Each: The Astrolabes and Related Texts 500
Sphäroguß als Werkstoff für Behälter zur Beförderung, Zwischen- und Endlagerung radioaktiver Stoffe - Untersuchung zu alternativen Eignungsnachweisen: Zusammenfassender Abschlußbericht 500
Additive Manufacturing Design and Applications 320
热门求助领域 (近24小时)
化学 材料科学 医学 生物 有机化学 工程类 生物化学 纳米技术 物理 内科学 计算机科学 化学工程 复合材料 遗传学 基因 物理化学 催化作用 电极 光电子学 量子力学
热门帖子
关注 科研通微信公众号,转发送积分 2464471
求助须知:如何正确求助?哪些是违规求助? 2132925
关于积分的说明 5434880
捐赠科研通 1858995
什么是DOI,文献DOI怎么找? 924607
版权声明 562561
科研通“疑难数据库(出版商)”最低求助积分说明 494654