Home self-management experience of gynaecological tumour patients with lower limb lymphoedema: a qualitative study

AIM: This study aimed to investigate self-management experiences at home among gynaecological cancer patients with lower limb lymphoedema. BACKGROUND: Lower limb lymphoedema is a common complication following gynaecological tumour treatment, causing physical and psychological distress and significantly impacting patients' quality of life. Clinical observations reveal that many patients with lower limb lymphoedema following gynaecological tumour treatment exhibit poor compliance with family self-management, leading to complications such as worsening oedema, cellulitis, or erysipelas. This study seeks to gain insight into patients' actual self-management experiences within their families, offering insights for tailored intervention plans and improved patient self-management compliance in clinical practice. METHODS: a phenomenological approach in qualitative research, one-on-one semi-structured interviews were conducted to gather face-to-face data from participants. A total of 16 gynaecological cancer patients with lower extremity lymphoedema were selected via purposive sampling from a tertiary cancer hospital. Semi-structured in-depth interviews took place between February and July 2021, with data analysed via the Colaizzi 7-step analysis method. FINDINGS: Five key themes emerged: inadequate and uneven availability of medical resources for patients with lymphoedema, limited support for patients, deficient home self-management skills, considerable psychological stress during home management, and variations in self-management behaviours. CONCLUSION: Based on the study findings, increased investment in lymphoedema-related medical care is recommended. Additionally, healthcare professionals can consider promoting family and social support, enhancing patient health education, offering remote psychological counselling, encouraging positive coping behaviours among gynaecological cancer patients with lower limb lymphoedema, and ultimately enhancing their self-management at home.