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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform

医学 电子健康 互操作性 仪表板 远程医疗 医疗保健 医疗急救 卫生信息交流 万维网 计算机科学 数据库 健康信息 经济 经济增长
作者
Wiebke Duettmann,Marcel Naik,Danilo Schmidt,Matthias Pfefferkorn,Matthias Kurz,Verena Graf,Andrea Kreichgauer,Severin Hoegl,Max Haenska,Tim Gielsdorf,Tillmann Breitenstein,Bilgin Osmanodja,Petra Glander,Jannis Bakker,Manuel Mayrdorfer,Carolin J. Gethmann,Friederike Bachmann,Mira Choi,Eva Schrezenmeier,Bianca Zukunft
出处
期刊:Journal of Visualized Experiments [MyJOVE]
卷期号: (170) 被引量:8
标识
DOI:10.3791/61899
摘要

The MACCS (Medical Assistant for Chronic Care Service) platform enables secure sharing of key medical information between patients after kidney transplantation and physicians. Patients provide information such as vital signs, well-being, and medication intake via smartphone apps. The information is transferred directly into a database and electronic health record at the kidney transplant center, which is used for routine patient care and research. Physicians can send an updated medication plan and laboratory data directly to the patient app via this secure platform. Other features of the app are medical messages and video consultations. Consequently, the patient is better-informed, and self-management is facilitated. In addition, the transplant center and the patient's local nephrologist automatically exchange notes, medical reports, laboratory values, and medication data via the platform. A telemedicine team reviews all incoming data on a dashboard and takes action, if necessary. Tools to identify patients at risk for complications are under development. The platform exchanges data via a standardized secure interface (Health Level 7 (HL7), Fast Healthcare Interoperability Resources (FHIR)). The standardized data exchange based on HL7 FHIR guarantees interoperability with other eHealth solutions and allows rapid scalability to other chronic diseases. The underlying data protection concept is in concordance with the latest European General Data Protection Regulation. Enrollment started in February 2020, and 131 kidney transplant recipients are actively participating as of July 2020. Two large German health insurance companies are currently funding the telemedicine services of the project. The deployment for other chronic kidney diseases and solid organ transplant recipients is planned. In conclusion, the platform is designed to enable home monitoring and automatic data exchange, empower patients, reduce hospitalizations, and improve adherence, and outcomes after kidney transplantation.
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